The good news is the transplant of Luke's stem-cells worked !! The new cells en-graphed into his bone marrow and are making an abundance of new good guys. We are praising God Lukas has made it through the worst part of his treatment. He is slowly feeling a bit better, awake more watching some t.v. and today built some Legos! (that's a big deal). His fever is gone! yay! but he is still vomiting, having diarrhea and he has developed a cough. His mouth and lips are healing pretty fast and he has only had two small doses of pain medication today.
The bad news is during the time he was having fevers two of his blood cultures grew a type of slow growing mold. I guess we breath in mold spores all the time but our bodies fight them off, but when your immune suppressed they flourish. They took Luke down to have a C.T scan of his lungs a couple nights ago and they do see some stuff in there. The ear,nose and throat doctors put a camera up his nose twice (not fun), and tomorrow he will have a MRI to examine his sinuses. He is on a couple different anti-fungal meds. and a team of specialists are trying to figure out this whole mold thing, they say they haven't ever seen this before... Hearing doctors say "We haven't ever seen this before...this is extremely rare" is getting pretty common for us. I'm trying not get worried, the doctor said treating this can take several months of IV medication 5 days a week or even surgery to remove it. That made me feel a little sick to my stomach. Lord please have mercy on my baby...I'm praying he does well for his MRI (he will be awake) and that his sinuses are clear and healthy and that the Lord will intervene into the doctors conversations and give them wisdom to see what this really is and how to deal with it.
Luke's Journey
- Mike and Erica
- An information & update page about Luke and his family’s journey through discovery, and treatment of his tummy "bump". AKA abdominal mass.
I pray that too, Erica...hang in there, I pray for strength & rest for you, as well. we love you guys!
ReplyDeleteKristi Traxler
We are agreeing with you in prayer for Luke's healing Erica! Tonight all the kids and teachers prayed for him and were so concerned for their little friend! Remind Luke of the scripture that "God is my helper. I will not fear"! And for you Erica, "Rejoice in the Lord always, again I say rejoice. The Lord is near. May your gentleness be evident to all. Don't be anxious about anything, but in everything, by prayer and petition, give your requests to God, and the peace of God which passes all understanding will guard your heart and mind in Christ Jesus." (Phil. 4:4-9) You are an amazing mom and this too shall pass. I love you and am praying for you sister!
ReplyDeleteLove,
Dar
Erica, THANK YOU SO MUCH for sharing this rough process with all of us! It's amazing to be on this journey with you and Lukie! I can't tell you how much we appreciate being able to be "a part" of this whole thing through reading the blog. This way, we know how to pray! Thank you again, sister!
ReplyDeleteAll our love,
Chris, Erin, Lilee and Lincoln
I just have to let you know I feel a special connection to Luke. Everytime I look in my Lukas face I see your Luke. Especially tonight when I was holding him in bed. I had just shaved his head yesterday, he was asleep and I was holding him and I imagined you doing the same with Luke. I lay hands on Luka and pray for Luke. We never forget what you all are going through and pray continually!! I PRAY LORD HAVE MERCY FOR YOUR CHILD!!
ReplyDeleteLove,
Daniele
Erica, I saw you briefly today but was unable to catch up to you. I know Mike (mine) was able to talk to you and let you know that whatever you and Mike (yours) need us to do for the fundraiser, just ask...or have someone else ask. Our hearts are so burdened for you. Our trust is in the Lord. Mike and I are fasting for Luke and our Isaiah and our girls lift Him to Jesus every night. Know that you are loved by so many and by the One who Knows you.
ReplyDelete