Kids are amazing ! We took apart the bunk beds and got Luke a step stool, climbing into bed proved to be a bit painful, but other than that he's been feeling pretty good. We are waiting to hear from the Oncologist office. They have a few more tests including a "bone scan" they need to do. They need to give Lukas the "sleepy medicine" again for that. At least they can do that through his broviac so they don't have to poke him! The nurses said we can expect to get a big binder detailing his treatment plan. We have a lot to learn.
Every day his broviac lines need to be "flushed", which means, injected with an anti-coagulant called heparin(to keep the lines from getting blood clots) Today I flushed his broviac lines all by myself! A little scary, but I think it will get easier after a few days.
Hi family,
ReplyDeletehang in there. It is definitely a new frontier you have begun, but who better to share it with than your friends and loved ones who are keeping you all in continual prayer? We love you!