Friday, December 18, 2009

Almost Christmas !!!

Merry Christmas Everyone! It's almost here. We will be very busy this week, but not with shopping and Christmas parties this year... Luke is due for his three-month
(post transplant) total disease evaluation. In other words, making sure the cancer is still gone... also known as tons of tests. One good thing about doing it before the new year is at least we have paid the deductible and co-pays to our insurance for this year!(thanks to all of you who have helped so generously...love you!)

We ended up taking the whole family with us to San Francisco on Tuesday. The kids were all very well behaved, but it was a long day. Luke got car sick and was throwing up in the car while we were stuck on the 680 in bad traffic jam, caused by an overturned truck. We had a bit of comic relief when, in total embarrassment, I, with no other option, dumped out Luke's little pink puke tray out my window followed by a motorcycle speeding past, right through the barf. The guy in the truck next to us got a kick out of the whole scenario. He was cracking up giving us the thumbs-up. Anyway, the doctor visits went well. Dr.Dvorak was happy to see Luke (they are Star Wars buddies). Luke introduced Peter as his "baby brother", Dr.Dvorak chuckled a little and glanced back and forth comparing the size of the two boys. Peter is now 45lbs while Luke is weighing in at 41. The ID doctor ended up deciding to keep Luke on the anti-fungal treatments for another 4 weeks. Bummer. But if that's what it takes...that's what it takes.

1 comment:

  1. Hello to your family. We are a fellow ganglioneuroblastoma family in Ohio. I read your blog and want you to know that we are praying for Luke and for him to beat this thing once and for all. You are the only other family we have found with the same diagnosis. It is so hard because it is rare and difficult to find others who walk the same mile. We will follow Luke's blog and pray that God will be glorified through all!

    Merry Christmas,

    Michael and Judy Hostetler
    www.caringbridge.org/visit/kaylihostetler

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