I followed Luke around like a mother hen yesterday while he rode Joe's scooter. He was having a great time...until...one little turn and....smack !...he hit his mouth on the handle. He was wearing his mask, so at least it was a clean hit, but his lip is huge. It is never fun to see your kid get hurt, you feel worried and guilty, but when your kid who just had a bone marrow transplant gets hurt, yikes, it's like magnified like 100 times. I was really freaked out. I'm so worried about infection right now and the mouth is so full of germs. I called his oncologist right away to see what I should do and they said "ice it and rinse his mouth every time he eats...that's all you can do".
Today, Luke, Grace, Pete and I left for Sacramento at 7am and we just got home at 1:45 pm. Everything went well. Luke's potassium level is good and his blood pressure was fine. One hour of normal saline and two hours of Amphotericn then more fluid. He is tolerating it good so far:)
We made some friends in San Francisco during Luke's transplant who's daughter Layla was diagnosed with the same cancer as Luke, stage three and everything. She had a relapse nine months after her transplant. They traveled to San Francisco (from Arizona)to have the new tumor removed and now just found out Layla has more cancer on her liver and in her lungs. I am broken hearted for them :(
Luke's Journey
- Mike and Erica
- An information & update page about Luke and his family’s journey through discovery, and treatment of his tummy "bump". AKA abdominal mass.
Hi Erica! I'll have to show you a picture sometime of Christian when he fell off his bike when he was Luke's age and had a huge lip too :(
ReplyDeleteThanks so much for the updates. I loved MIke's encouraging words to you about God being in control! When Christian was little every night after his bath we'd sing the song, God is in Control, by Twila Paris. It truly blessed us each day and is soooooo true and soooooo important to always remember. I love you and will talk to you soon. Love, Dar